Highs and Lows

Alyssa, Jeff and Josh got to visit today.They were very excited, especially because they got to miss school. They came to see Isaac and then they went to the family play center and had lots of fun. Grandma Barnes stayed with Isaac and we all had lunch together in the cafeteria. Jeff had a hard time looking at Isaac, Josh seemed ok with things, and Alyssa kept telling me that he didn't look like Isaac.

 Isaac was more playful today than he has been before. He sat in his crib and looked at books and toys for a while. It was so nice to see, we even got a few smiles out of him. I love the wink he gave me in this picture!

After lunch things went downhill fast. He started throwing up everything again and being inconsolable. He threw up on his IV so much that we needed to change the dressing around it. While they were changing the dressing it came out a little and they couldn't get it back in. We opted to leave it out as long as we can, but that means that he has to be drinking enough fluids on his own and controlling his pain with only oral medications. He hasn't slept much at all since this morning and when he's awake he is really hard to comfort. We are working to get little bits of baby food in and to keep them down, he won't have anything to do with formula. Alan is staying later tonight to try to get Isaac asleep and settled a bit. I'm getting super exhausted and hoping I can find the energy to get through this night because I think it is going to be a long one.